Monday, December 22, 2014

Baptist discovers Christ in the Eucharist

Wonderful Conversion story. How one baptist came to the real Eucharist by learning what the early Christians believed, taught and practiced according to the Bible.
Wonderful Conversion story. A Baptist discovers the real Eucharist.

Tuesday, October 7, 2014

How does one receive salvation, justification, new birth and eternal life?

How does one receive salvation, justification, new birth and eternal life?
By believing in Christ (Jn 3:16; Acts 16:31)?
John 3:16 “For God so loved the world, that he gave his only Son, that whoever believes in him should not perish but have eternal life.
Acts 16:31 
31 And they said, “Believe in the Lord Jesus, and you will be saved, you and your household.”

By repentance (Acts 2:38; 2 Pet 3:9)? [SOMETHING WE DO]
Acts 2:38 38 And Peter said to them, “Repent and be baptized every one of you in the name of Jesus Christ for the forgiveness of your sins, and you will receive the gift of the Holy Spirit.
2 Peter 3:9 The Lord is not slow to fulfill his promise as some count slowness, but is patient toward you, not wishing that any should perish, but that all should reach repentance.

By baptism (Jn 3:5; 1 Pet 3:21; Titus 3:5)? [SOMETHING WE DO]
John 3:5 Jesus answered, “Truly, truly, I say to you, unless one is born of water and the Spirit, he cannot enter the kingdom of God.
1Pet 3:21 21 Baptism, which corresponds to this, now saves you, not as a removal of dirt from the body but as an appeal to God for a good conscience, through the resurrection of Jesus Christ,
Titus 3:5 he saved us, not because of works done by us in righteousness, but according to his own mercy, by the washing of regeneration and renewal of the Holy Spirit,

By the work of the Spirit (Jn 3:5; 2 Cor 3:6)? 
John 3:5 Jesus answered, “Truly, truly, I say to you, unless one is born of water and the Spirit, he cannot enter the kingdom of God.
Cor 3:6 who has made us sufficient to be ministers of a new covenant, not of the letter but of the Spirit. For the letter kills, but the Spirit gives life.

By declaring with our mouths (Luke 12:8; Rom 10:9)? [A WORK]
Luke 12:8 Acknowledge Christ Before Men
“And I tell you, everyone who acknowledges me before men, the Son of Man also will acknowledge before the angels of God,
Roman 10:9 because, if you confess with your mouth that Jesus is Lord and believe in your heart that God raised him from the dead, you will be saved.

By coming to a knowledge of the Truth (1 Tim 2:4; Heb 10:26)? [OUR ACHIEVEMENT]
1 Tim 2:4 who desires all people to be saved and to come to the knowledge of the truth.
Heb 10:26 26 For if we go on sinning deliberately after receiving the knowledge of the truth, there no longer remains a sacrifice for sins,

By works (Rom 2:6, 7; James 2:24)?
Rom 2:6-7 He will render to each one according to his works: to those who by patience in well-doing seek for glory and honor and immortality, he will give eternal life;
James 2:24 24 You see that a person is justified by works and not by faith alone.

By grace (Acts 15:11; Eph 2:8)?
Acts 15:15 11 But we believe that we will be saved through the grace of the Lord Jesus, just as they will.”
Eph 2:8 
For by grace you have been saved through faith. And this is not your own doing; it is the gift of God,

By perseverance (Matt 10:22; Mk 13:13; Col 1:22-23)?
Matt 10:22 
22 and you will be hated by all for my name’s sake. But the one who endures to the end will be saved.
Mk 13:13 13 And you will be hated by all for my name’s sake. But the one who endures to the end will be saved.
Col 1:22-23 22 he has now reconciled in his body of flesh by his death, in order to present you holy and blameless and above reproach before him, 23 if indeed you continue in the faith, stable and steadfast, not shifting from the hope of the gospel that you heard, which has been proclaimed in all creation7 under heaven, and of which I, Paul, became a minister.

By his blood (Rom 5:9; Heb 9:22)?
Rom 5:9 
Since, therefore, we have now been justified by his blood, much more shall we be saved by him from the wrath of God.
Heb 9:22 22 Indeed, under the law almost everything is purified with blood, and without the shedding of blood there is no forgiveness of sins.

By His righteousness (Rom 5:17; 2 Pet 1:1)?
Rom 5:17 17 For if, because of one man’s trespass, death reigned through that one man, much more will those who receive the abundance of grace and the free gift of righteousness reign in life through the one man Jesus Christ.
2 Pet 1:1 Simeon Peter, a servant and apostle of Jesus Christ,
To those who have obtained a faith of equal standing with ours by the righteousness of our God and Savior Jesus Christ:

By His cross (Eph 2:16; Col 2:14)?
Eph 2:16 16 and might reconcile us both to God in one body through the cross, thereby killing the hostility.
Col 2:14 14 by canceling the record of debt that stood against us with its legal demands. This he set aside, nailing it to the cross.


- See more at: http://www.catholic-convert.com/blog/2014/10/07/e-mail-from-a-southern-baptist/?utm_source=dlvr.it&utm_medium=facebook#sthash.PROXTykf.dpuf

Thursday, September 25, 2014

Mission Statement

(Courtesy of Patrick Madrid)
I AM A PART of the Fellowship of the Unashamed.
The die has been cast. The decision has been made. I have stepped over the line. I won’t look back, let up, slow down, back away or be still.
My past is redeemed, my present makes sense, and my future is in God’s hands. I am finished and done with low living, small planning, the bare minimum, smooth knees, mundane talking, frivolous living, selfish giving, and dwarfed goals.
I no longer need preeminence, prosperity, position, promotions, applause, or popularity. I don’t have to be right, first, the best, recognized, praised, regarded, or rewarded. I now live by faith. I lean on Christ’s presence. I love with patience, live by prayer, and labor with the power of God’s grace.
My face is set. My gait is fast, my goal is heaven. My road is narrow, my way is rough, my companions are few, my Guide is reliable, and my mission is clear.
I cannot be bought, compromised, detoured, lured away, turned back, deluded, or delayed. I will not flinch in the face of sacrifice, hesitate in the presence of adversity, negotiate at the table of the enemy, ponder at the pool of popularity, or meander in the maze of mediocrity.
I won't give up, shut up, let up or slow up until I have stayed up, stored up, prayed up, paid up, and spoken up for the cause of Christ.
I am a disciple of Jesus. I am a Catholic. I must go until He comes, give until I drop, speak out until all know, and work until He stops me. And when He returns for His own, He will have no difficulty recognizing me. My banner is clear: I am a part of the Fellowship of the Unashamed. 

Friday, September 5, 2014

What is the Gospel? What about Grace Alone? What about Faith Alone? The short answer.

     The Gospel, simply put is the story of Jesus. It is Not how we are justified. Justification is the effect of believing in the gospel and isn't something we even need to understand fully for eternal life. So when someone says you must believe we are saved by "faith alone", that is incorrect, and not even taught in the Bible. It is a false premise. We are saved by Grace Alone because it was God's Grace that He provided the free gift of  Himself for the whole world, Jesus, to pay the price for sin so that we could be forgiven. So why doesn't everyone have eternal life? The gift was free and for everyone, but  in order to receive that Grace we need to cooperate with it through Faith in Jesus.  The Gospel is the message that Jesus Christ  is the Son of God who came down from heaven, died for our sins and rose on the third day, so that we might attain eternal life and hence be saved. If we believe that and we trust that, then we  have faith in Christ, and if we have faith we will follow Christ, and if we follow and believe Christ we will obey his commands and do. However, our faith/trust isn't in what we do, but in Christ. So for that subset of Christians that say good works play absolutely no role whatsoever in salvation, they are incorrect. It is true that "Works of the Law" play no role in our salvation. "Works of the Law" in the New Testament  refers to the Old Testament Moasic ceremonial laws. Most Christians I know that claim "Faith Alone" don't actually believe that in practice.  When you ask them: "Well is belief necessary, is love necessary, is forgiveness necessary, is repentance necessary ?" they ultimately have to say "yes",  because the Bible says they are necessary and those are all things you do. 

Tuesday, April 15, 2014

Why I came to the conclusion that infant baptism is scriptural, and is what the early Christians really practiced and taught.


Why I Came To The Conclusion That, Along With Baptism For Adult Converts, Infant Baptism Is Scriptural, And Is What The Early Christians Really Practiced and Taught

First:I have been on both sides of the fence on this issue. For many years I too believed infant baptism was not scriptural and not what the early Christians did. Back in college studying the Bible with the Church of Christ I was convinced that my infant baptism (which was actually not as an infant but at age 5) was non scriptural and I was re-baptized by submersion as an adult.
(Technically to be immersed is not the same as submersion- Many churches that say they baptize by immersion only, actually mean submersion only. As interpreted by other churches immersion just means water flowing over the head and down over the body and does not necessarily mean submersion)

For many reasons as an adult I began to question this. One of the reasons that led me to look back into this was the fact that my oldest was blind and mentally handicapped. I was basically told at my Baptist Church that since he had the mind of a child that he had no need for baptism. There was an age of accountability. Now I never read anything about an age of accountability in the Bible and other problems with this concept emerged. When is the age of accountability? Well I was told it is different for all children. Ok so how is a loving parent suppose to know? My young child then in theory could be out of God's grace and not saved and I wouldn't even know it. So with this type of reasoning most good Baptist parents want their children to come to salvation early. Since they believed in once saved always saved (which is another discussion), parents tended to push their children to make a profession of faith or say a sinners prayer much too early before the child really understood it. Also they preached an adult believers baptism but I still saw children as young as 4 being baptized. However, that wasn't the norm. My child was mentally handicapped. He understood things as a child and has the faith of a child. I also began to wonder about only submersion as a means of baptism. That actually is a separate discussion from infant baptism so I probably should stick to just one issue for this article. But I did wonder about all the adults back in Christ's time and today that couldn't be Baptized by submersion, due to age and or disabilities. I began to wonder about different parts of the world where it is too cold most of the year etc. Why would God ask us to do something that was so impractical for so many?

Anyway, I started to revisit the issue since many churches, not just the Catholic Church, still baptized infants. Why did they do this, especially if it is unscriptural? Some denominations that baptize infants that I can think of off the top of my head are; Catholic, Anglican, Episcopal, Methodist, Presbyterian, Orthodox, and Lutheran. The majority of Christendom baptizes infants. Actually in the record of documented church history, adult only baptism by submersion only is a relatively recent thing beginning with the anabaptists.

Second:

I went back to the scriptures.

Paul notes that baptism has replaced circumcision (Col. 2:11–12). In that passage, he refers to baptism as "the circumcision of Christ" and "the circumcision made without hands." Of course, usually only infants were circumcised under the Old Law; circumcision of adults was rare, since there were few converts to Judaism. If Paul meant to exclude infants, he would not have chosen circumcision as a parallel for baptism.

Peter explained what happens at baptism when he said, "Repent, and be baptized every one of you in the name of Jesus Christ for the forgiveness of your sins; and you shall receive the gift of the Holy Spirit" (Acts 2:38). But he did not restrict this teaching to adults. He added, "For the promise is to you and to your children and to all that are far off, every one whom the Lord our God calls to him" (2:39).


Comparison of Circumcision to Baptism
We know that all who were circumcised in the Old Testament were not believers or did not grow into adulthood believing in the Jewish God –

Rom. 2:28, 29: "For he is not a Jew, which is one outwardly; neither is that circumcision which is outward in the flesh: but he is a Jew, which is one inwardly; and circumcision is that of the heart, in the spirit, and not in the letter; whose praise is not of men, but of God."
There were many who did not confess their sins and walked contrary to the will of God. They received punishment due to it.

Lev. 26:40, 41: "If they shall confess their iniquity and the iniquity of their fathers, with their trespass which they trespassed against me, and that I also have walked contrary unto them, and have brought them into the land of their enemies; if then their uncircumcised hearts be humbled, and they then accept of the punishment of their iniquity."

Knowing that not all those who receive the circumcision will be believers, the Lord gave the sign of circumcision even to infants.

Now from the description of the sign, it is evident that both the signs – circumcision and baptism – have exactly the same meaning viz. repentence and turning back to God.

Old covenant : Circumcision
Deut. 10:16: "Circumcise, therefore, the foreskin of your heart and be no more stiffnecked."
Deut. 30:6: "And the Lord thy God will circumcise your heart and the heart of your seed to love the Lord thy God with all your heart and with all your soul, that you may live." .
Jer. 4:4: "Circumcise yourselves to the Lord and take away the foreskin of your heart, ye men of Judah and inhabitants of Jerusalem

New Covenant: Baptism
Acts 2:38: "Then Peter said unto them, Repent and be baptized every one of you in the name of Jesus Christ for the remission of sins, and ye shall receive the gift of the Holy Ghost
Act 22:16: "And now, why tarriest thou? arise, and be baptized and wash away thy sins, calling on the name of the Lord." 
Rom. 6:4: "Therefore, we are buried with him by baptism into death: that like as Christ was raised up from the dead by the glory of the Father, even so we should walk in newness of life."
Gal. 3 :28: "For as many of you as have been baptized into Christ have put on Christ
Apart from the comparison between the signs Paul actually equates them in the following passages:

Col. 2:11, 12: "In whom also ye are circumcised with the circumcision made without hands, in putting off the body of the sins of the flesh by the circumcision of Christ; buried with him in baptism, whereas also ye are risen with him through the faith of the operation of God, who hath raised him from the dead." .
Phil. 3 :3: "For we are the circumcision which worship God in the spirit and rejoice in Christ Jesus, and have no confidence in the flesh."

Third:
An argument I use to hear as a fundamentalist was baptism requires faith and since infants and very young children (Also the brain injured and mentally handicapped) are incapable of having faith/understanding they cannot be baptized. It is true that Christ prescribed instruction and actual faith for adult converts (Matt. 28:19–20), but his general law on the necessity of baptism (John 3:5) puts no restriction on the subjects of baptism. Although infants are included in the law he establishes, requirements of that law that are impossible to meet because of their age are not applicable to them. They cannot be expected to be instructed and have faith when they are incapable of receiving instruction or manifesting faith. The same was true of circumcision; faith in the Lord was necessary for an adult convert to receive it, but it was not necessary for the children of believers.

Abraham had faith, but Jewish children were circumcised on the faith of their parents not their own faith. Likewise,why not the Children of believers be baptized on the faith of their parents? I believe handicapped children like my oldest son can be baptized on the faith of us, his parents. Also looking at (Matt. 19:14) His words can be taken to apply to anyone capable of belonging to his kingdom. He asserted such even for children: "Let the children come to me, and do not hinder them; for to such belongs the kingdom of heaven"

(Luke 18:15–16) "Now they were bringing even infants to him that he might touch them; and when the disciples saw it, they rebuked them. But Jesus called them to him, saying, ‘Let the children come to me, and do not hinder them; for to such belongs the kingdom of God’"
The text in Luke 18:15 says, "Now they were bringing even infants to him" (Greek, Prosepheron de auto kai ta brepha). The Greek word brepha means "infants"—children who are quite unable to approach Christ on their own and who could not possibly make a conscious decision to "accept Jesus as their personal Lord and Savior. notice what Jesus said: "to such as these [referring to the infants and children who had been brought to him by their mothers] belongs the kingdom of heaven." The Lord did not require them to make a conscious decision. He says that they are precisely the kind of people who can come to him and receive the kingdom. On what basis, then can infants and young children be excluded from baptism? If Jesus said "let them come unto me," who are we to say "no," and withhold baptism from them?


The Bible never says, "Faith in Christ is necessary for salvation except for infants (mentally handicapped, brain injured etc)"; it simply says, "Faith in Christ is necessary for salvation." Therefore fundamentalists must admit there is an exception for infants unless they wish to condemn instantaneously all infants to hell. That is precisely what they do. In the Baptist Church I was in they taught the idea of "the age of reason or accountability" to help them explain how infants, who haven't accepted Christ or could not possibly have any faith in Christ, would be saved and not go to hell. They make an exception for infants. This is no different than the churches that allow baptism for infants based on the parents faith and not the child's in my opinion.

Fourth:
There is implicit evidence that children were baptized in the Bible- Whole households were baptized. Yes it is an assumption that in these households were children and they too were baptized.

Acts 16:15 (New American Standard Bible) 15And when she and her household had been baptized, she urged us, saying, "If you have judged me to be faithful to the Lord, come into my house and stay." And she prevailed upon us.

Acts 16:33 (New American Standard Bible)33And he took them that very hour of the night and washed their wounds, and immediately he was baptized, he and all his household.

Acts 18:8 (New American Standard Bible) 8Crispus, the leader of the synagogue, believed in the Lord with all his household, and many of the Corinthians when they heard were believing and being baptized.

1 Corinthians 1:16 (New American Standard Bible)16Now I did baptize also the household of Stephanas; beyond that, I do not know whether I baptized any other.

Lastly if infant baptism were not the rule, then we should have references to the children of Christian parents joining the Church only after they had come to the age of reason, and there are no such records in the Bible. In the books of the New Testament that were written later in the first century, during the time when children were raised in the first Christian homes, we never—not even once—find an example of a child raised in a Christian home who is baptized only upon making a "decision for Christ." Rather, it is always assumed that the children of Christian homes are already Christians, that they have already been "baptized into Christ" (Rom. 6:3).

Fifth: 
Now for History
(This is not extensive or exhaustive research of history as I don't wish at this point to go back through all my notes and books for documentation at this point for my little blog article)
There are many documents and writings that show that the early Church was baptizing children. They may not have been baptizing many children in Apostolic times because most were adult converts, but as those converts had children it became common for the children of the converts to be baptized and this is documented.

Origen, for instance, wrote in the third century that "according to the usage of the Church, baptism is given even to infants" (Holilies on Leviticus, 8:3:11 [A.D. 244]). The Council of Carthage, in 253, condemned the opinion that baptism should be withheld from infants until the eighth day after birth. Later, Augustine taught, "The custom of Mother Church in baptizing infants is certainly not to be scorned . . . nor is it to be believed that its tradition is anything except apostolic" (Literal Interpretation of Genesis 10:23:39 [A.D. 408]).

What actually helped me turn the tide in my thinking was a document called the Didache . It is not scripture, but it is a document of the early church at the end of the time of the Apostles around 70 to 90 ad. It is a document that is more of a hand book for early Christians. I kinda think of it as more of a Church bulletin or finding ancient Pastors notes. The Didache . This document is very interesting and describes in detail how to do baptisms. Actually reading through it again it doesn't directly pertain to infant baptism but does describe ways to perform baptism in different circumstances such as when there is no living water (ie: a natural stream) then household water and pouring over the head can be used.

In Conclusion:
1) We see parallels between baptism as the means of entrance into the New Covenant and the practice of circumcision as entrance into the Old Covenant for infant Hebrew males
2) We know from Hebrews that the New Covenant is better than the Old Covenant
3) We also see Jesus chastising those who would forbid little children from coming to him
4) There's scriptural record of entire households, presumably containing infants, that were baptized
5) And we know that the Church can provide witness of the practice of infant baptism from the 2nd century onward.
6) Furthermore, nowhere in scripture is the practice explicitly condemned

Tuesday, August 14, 2012

Intubation and Life on a Ventilator is NOT Torture or inhumane

     One of my, distant friends posted a link to this article on Facebook, and this is really her view and unfortunately the view of so many people and most of the medical establishment. I have yet to figure out why intubation/ ventilation is considered an extreme measure. It doesn't seem extreme or all that painful at all to me. My nephew Samuel doesn't seem bothered by it at all from what I can tell. It just seems like it would be a ton of work for mom and dad. The article wants to stereotype parents who fight for their kids against the medical establishment as all misguided religious zealots who are hopelessly wanting a miracle. I realize every case is different but I also see bea
utiful children that are enjoying life with smiles and giggles that wouldn't be here today if they weren't given that chance. My thinking is why not try ventilating. They can die on a ventilator too, but maybe they won't and maybe miracles can still happen. This article irritated me. I do know there has to be a balance and each case is different and only the parents and Drs as a team can determine the best course of action and hopefully work together for the best outcome but I think in the case of Thanatophoric dysplasia it definitely is an uphill battle for parents against the medical establishment. It is so awesome to actually see what these little guys can achieve when given a chance. 


The article I was upset about is here: 
Parents who believe in miracles 'torturing' dying children, doctors warn

      My sister-in-law would be considered one of those religious zealots mentioned in the article who fought the medical establishment to intubate Samuel. He was born a Thanatophoric dwarf which is a condition considered incompatible with life. 
Very few of these kids have been allowed to live because this is the viewpoint of the medical establishment and in many hospitals and their Dr's will refuse to intubate these children and most parents will not put up a fight. My sister-in -aw is now writing a book about her ordeal Called a "Miracle in My Living Room"





Tuesday, July 24, 2012

Thanatophoric Dysplasia Survivors

Hi, My sister-in-law just started a public Facebook Group for Thanatophoric Dysplasia Survivors which my nephew is a survivor. He will be 7 year old next month. http://www.facebook.com/groups/356242194456724/

Her desire in creating this group is to provide hope and inspiration to families who are facing a diagnosis of Thanatophoric Dysplasia (TD). Though you will hear from the medical community that this diagnosis is "not compatible with life", our children are survivors. Thomas, Luke, Christian, Charlie and Samuel are proof that miracles happen. I have made this an open group with the hopes that many will see the stories of these amazing children. For those of you who are pregnant with a diagnosis of TD, please feel free to ask questions. I am sure the other moms of this group will be happy to share their experiences. To see pictures of my son and read my journal, go to www.caringbridge.org/visit/samuelmann.



Samuel's 7th Birthday




Wednesday, July 18, 2012

Surviving with Thanatophoric Dysplasia- A Very Happy little kid-


Surviving with Thanatophoric Dysplasia- A Very Happy little kid- 


   Here are all my past posts about my nephew who is a Thanatophoric Dwarf in one place. He is still doing great and about to turn 7 years old in August. Samuel's mom now has her own blog about Samuel at http://hopeseed.wordpress.com/



Monday, March 5, 2012

Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 6 years old

Samuel is my nephew his mom is my sister-in-law Evelyn. Our husbands are brothers.


Samuel's Mom now has her own blog at:

  http://hopeseed.wordpress.com/



Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 6 years old!

This is Samuel and one of his teachers.

Update Samuel Turned 6 on Aug 2, 2011 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.






Other More Recent Pictures from about 2009 to present (11/2010) not in any order.


This is Samuel and his mom Evelyn (Evelyn is my sister-in-law and Samuel is my nephew)




Isn't he Darling!!




_______________________________________________________________________





8/1/2008 Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.
This is Samuel.
Hope you enjoy it and laugh along!!

Surviving Well on a ventilator, Surviving Thanatophoric Dysplasia, Surviving with Ventilator not painful, Thanatophoric Dwarf, Living With Thanatophic Dysplasia

Thanatophoric images, Thanatophoric pictures, Children living with Thanatophoric Dysplasia, thanatophoric dysplasia type 1 survivors

Tuesday, November 10, 2009


Chose Life Story, Samuel living with Thanatophoric Dysplasia


As most of you know my nephew Samuel was born with a condition called Thanatophoric Dysplasia which is a condition that is considered incompatible with life. My Sister-in-law and brother-in-law went against Doctors wishes and did not have a therapeutic abortion. A few weeks ago Spirit FM 90.5 aired their story This is an audio file of that story that aired on Spirit FM.

Here is the audio Story/ Interview that aired

 

Here is a link to some pictures of my nephew Samuel
Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 4 years old!

Samuel's Caring Bridge Website


Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia, Living with thanatophoric dysplasia, surviving thanatophoric dysplasia, living on a ventilator

Friday, January 16, 2009


Update: Sam a Surviving 3 1/2 year old Thanatophoric Dwarf has Fun at Sea World & Disney



Update: 1/16/09
Hi Everyone,

This is another Update on the wonderful and amazing life of Samuel who was born with Thanatophoric Dysplasia. He is surviving, thriving, full of life and doing fantastic. Here he is in his shades on his trip to Disney & Sea World. The wonderful Make A Wish foundation granted this wish for Samuel and his family. I want to let families know that if they ever have to face the choice of whether to put their child on a ventilator that these children do not live in pain and do have a very wonderful quality of life. I don't always think doctors give parents all the information necessary to make an informed decision. I think doctors in many cases scare people away from life saving procedures especially when they feel there is supposedly no hope. I want to let parents know they do have options. Choose life.


He is a giggly, happy toddler who does interact with his environment.
Samuel and His Mom at Disney & Sea World in Orlando Florida
A Wish Granted to Him By The Make A Wish Foundation

Samuel's Website
Sign his Guest book


A Sampling of Pictures From Samuel's Trip













Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia, Living with thanatophoric dysplasia, surviving thanatophoric dysplasia, living on a ventilator

Saturday, September 18, 2010


Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 5 years old!

Update Samuel Turned 5 on Aug 2, 2010 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.






Other More Recent Pictures from about 2009 to present (11/2010) not in any order.












_______________________________________________________________________





8/1/2008 Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia



Saturday, August 1, 2009


Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 4 years old!

Samuel is my nephew his mom is my sister-in-law Evelyn. Our husbands are brothers. This was an old post. Samuel Turned 6 in 2011 and his mom now has her own blog.


Samuel's Mom now has her own blog at:

  http://hopeseed.wordpress.com/




(new update: of 11/10/2009 A few weeks ago Spirit FM 90.5 aired their story. Here is the audio Story/ Interview that aired)

Yeah! Another Birthday- I can't believe it has been another whole year!!

For anybody new-- here is a little information about Samuel :

He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only very few have ever been known to survive into early childhood. Samuel will turn 4 years old this Sunday and miracle of miracles he is breathing on his own off the ventilator for short periods of time. According to doctors he was never suppose to be able to do that. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 4th Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

This is Samuel.
Samuel with his mom


Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia



Boy I'm tuckered out. Just too much excitement!

Hey you-- get down on the floor and play with me.

Monday, July 28, 2008


Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 3 years old!


Samuel is now 6 years old as of August 2011 

Samuel is my nephew his mom is my sister-in-law Evelyn. Our husbands are brothers.

Here is a link to my Sister-In-Law's New blog as of March 2012

Samuel's Mom now has her own blog at:

  http://hopeseed.wordpress.com/


Update Samuel Turned 5 Years Old on Aug 2, 2010 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.





More Updated Pictures: From 2009 to present 11/2010 not in any order














(new update: of 11/10/2009 A few weeks ago Spirit FM 90.5 aired their story. Here is the audio Story/ Interview that aired) 



Click Here to Read A News Article on Samuel and Watch A video done by Catholic News Agency
Checkout Samuel's Newest Update 1/16/09 His Trip to Disney & Sea World

Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia Miracle Baby, Surviving with Thanatophoric Dysplasia, Thanatophoric Dysplasia, Thanatophoric pictures, Thanatophoric Dwarfism