Showing posts with label Inspirational. Show all posts
Showing posts with label Inspirational. Show all posts

Saturday, September 18, 2010

Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 5 years old!

Update Samuel Turned 5 on Aug 2, 2010 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.





Other More Recent Pictures from about 2009 to present (11/2010) not in any order.












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8/1/2008 Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia


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Monday, October 12, 2009

Wow- John Michael Talbot is a Convert to the Catholic Church -- I never Knew

Wow, I have loved John Michael Talbot's music for over 20 years (Way before I was Catholic)- Actually for probably 15 of those years I didn't even realize he was Catholic. You would have thought the monks robe he was wearing would have given it away LOL I guess I never paid attention to the CD cover art. I never knew his story or that at one period in his life he was very anti-Catholic. I found his Christian testimony on you tube and just all I can say is Wow!
The actual testimony starts in segment 1/5 at the 5 minute mark. It is 5 segments and is therefore relatively long but it is well worth a listen.









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Saturday, August 1, 2009

Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 4 years old!

Samuel is my nephew his mom is my sister-in-law Evelyn. Our husbands are brothers. This was an old post. Samuel Turned 6 in 2011 and his mom now has her own blog.


Samuel's Mom now has her own blog at:

  http://hopeseed.wordpress.com/




(new update: of 11/10/2009 A few weeks ago Spirit FM 90.5 aired their story. Here is the audio Story/ Interview that aired)


Yeah! Another Birthday- I can't believe it has been another whole year!!

For anybody new-- here is a little information about Samuel :

He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only very few have ever been known to survive into early childhood. Samuel will turn 4 years old this Sunday and miracle of miracles he is breathing on his own off the ventilator for short periods of time. According to doctors he was never suppose to be able to do that. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 4th Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

This is Samuel.
Samuel with his mom


Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia



Boy I'm tuckered out. Just too much excitement!

Hey you-- get down on the floor and play with me.

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Friday, January 16, 2009

Update: Sam a Surviving 3 1/2 year old Thanatophoric Dwarf has Fun at Sea World & Disney



Update: 1/16/09

Hi Everyone,

This is another Update on the wonderful and amazing life of Samuel who was born with Thanatophoric Dysplasia. He is surviving, thriving, full of life and doing fantastic. Here he is in his shades on his trip to Disney & Sea World. The wonderful Make A Wish foundation granted this wish for Samuel and his family. I want to let families know that if they ever have to face the choice of whether to put their child on a ventilator that these children do not live in pain and do have a very wonderful quality of life. I don't always think doctors give parents all the information necessary to make an informed decision. I think doctors in many cases scare people away from life saving procedures especially when they feel there is supposedly no hope. I want to let parents know they do have options. Choose life.

He is a giggly, happy toddler who does interact with his environment.
Samuel and His Mom at Disney & Sea World in Orlando Florida
A Wish Granted to Him By The Make A Wish Foundation

Samuel's Website
Sign his Guest book

A Sampling of Pictures From Samuel's Trip















Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia, Living with thanatophoric dysplasia, surviving thanatophoric dysplasia, living on a ventilator
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Monday, July 28, 2008

Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 3 years old!


Samuel is now 6 years old as of August 2011 


Samuel is my nephew his mom is my sister-in-law Evelyn. Our husbands are brothers.

Here is a link to my Sister-In-Law's New blog as of March 2012

Samuel's Mom now has her own blog at:

  http://hopeseed.wordpress.com/


Update Samuel Turned 5 Years Old on Aug 2, 2010 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.





More Updated Pictures: From 2009 to present 11/2010 not in any order














(new update: of 11/10/2009 A few weeks ago Spirit FM 90.5 aired their story. Here is the audio Story/ Interview that aired)



Click Here to Read A News Article on Samuel and Watch A video done by Catholic News Agency

Checkout Samuel's Newest Update 1/16/09 His Trip to Disney & Sea World

Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia



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Wednesday, June 11, 2008

Love, Hope and Miracles; Miracle Baby

This post is to let anyone interested know about a little guy surviving against all odds. He was born a Thanatophoric Dwarf. It is also called thanatophoric dysplasia. You can look it up on the web. This condition is considered not compatible with life and usually the only treatment offered to most moms is a theraputic abortion. Well this little guys family said no, and by the grace of God this little tyke is surviving against all odds. He will be 3 in August. He is just too cute. Docs had even said he would be a vegetable and not be able to give or receive love or smile or interact. Well you can see by his darling smile the Docs were wrong. He needs continued support and prayer.
Here is his website: Samuel's Website
Samuel's name means God Hears
Thought I would post a nice story.

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