Monday, March 5, 2012

Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 6 years old

Samuel is my nephew his mom is my sister-in-law Evelyn. Our husbands are brothers.

Samuel's Mom now has her own blog at:

Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 6 years old!

This is Samuel and one of his teachers.

Update Samuel Turned 6 on Aug 2, 2011 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.

Other More Recent Pictures from about 2009 to present (11/2010) not in any order.

This is Samuel and his mom Evelyn (Evelyn is my sister-in-law and Samuel is my nephew)

Isn't he Darling!!


8/1/2008 Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.
This is Samuel.
Hope you enjoy it and laugh along!!

Surviving Well on a ventilator, Surviving Thanatophoric Dysplasia, Surviving with Ventilator not painful, Thanatophoric Dwarf, Living With Thanatophic Dysplasia

Thanatophoric images, Thanatophoric pictures, Children living with Thanatophoric Dysplasia, thanatophoric dysplasia type 1 survivors

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