Monday, July 28, 2008

Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 3 years old!

Samuel is now 6 years old as of August 2011 

Samuel is my nephew his mom is my sister-in-law Evelyn. Our husbands are brothers.

Here is a link to my Sister-In-Law's New blog as of March 2012

Samuel's Mom now has her own blog at:

Update Samuel Turned 5 Years Old on Aug 2, 2010 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.

More Updated Pictures: From 2009 to present 11/2010 not in any order

(new update: of 11/10/2009 A few weeks ago Spirit FM 90.5 aired their story. Here is the audio Story/ Interview that aired)

Click Here to Read A News Article on Samuel and Watch A video done by Catholic News Agency

Checkout Samuel's Newest Update 1/16/09 His Trip to Disney & Sea World

Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia


kritterc said...

Hi Deeny - What a miracle this little boy is!! I will certainly keep him and his family in my prayers. My daughter is an RN in a neonatal intensive care unit and I always get choked up when she tells me stories of those little survivors and how hard they fight. I was going through some of my past blogs and noticed you posted a comment several weeks ago. I don't post on my blog site much - not sure why. I am certainly going to try to do a better job of maintaining my site. It is so exciting about your husband and children joining the Church. Congratulations!! Peace and blessings.

Anonymous said...

Hello. I would like to say that I stand in awe of your little boy. My granddaughter, Bailey Isabella, was diagnosed intrauterine with thanatophoric dysplasia. The physicians advised terminating the pregnancy immediately. My daughter chose to cary Bella, who became affectionately known as "our little Butterfly". My daughter cherished each and every movement and moment Bella gave her. At the thirty week mark of the pregnancy, fluid accumulation made my daughter miserable but she kept going. She loved every minute that she was given with Bella. Sadly, at 36 weeks, on March 12, 2008, my daughter went into labor and delivered her stillborn daughter. Bella was absolutely beautiful, almost angelic. Her arms and legs were almost nonexistant. My daughter's statement at her graveside service? "Bella didn't need arms and legs. She is an angel and she had wings. Fly, Bella Fly! And fly she did, right into the arms of her Heavenly Father. We miss our little Butterfly but we have the assurance that we will see her again. God bless your little boy.

Olivia D {The Road to Poland} said...

Hi, I don't know much about this disorder. I just wanted to say that I think you are a strong and lovely person to give this little boy a chance at life. And he's living! So many others are never given this chance as their mothers are encouraged to terminate. Thank you for giving us hope. We will say a special prayer for your family tonight.