I AM MAD AT ENGLAND!!!
I have to vent--
Short history: There is a little boy named Samuel that was born a Thanatophoric dwarf- He wasn't suppose to survive. He is almost 4 now.
Well I belong to a Thanatophoric support board:
Anyway there is a young women on the board from England whose baby has been given the same diagnosis as Samuel and the medical community won't do anything for her.
They won't let her deliver at a hospital that has an intensive neonatal unit- She has to deliver at her local hospital. They won't let her have a c- section even if the baby is breech that would give the baby a better chance of at least being born alive instead of still born. They won't give the baby any special treatment like a vent after he is born. They won't even give her a doctor for the delivery jut a midwife. No offense to midwives, but this is a high risk pregnancy especially for the baby. She was pressured to abort but said no. They have just decided that this baby isn't worth any special effort at all because his diagnosis is fatal/ futile!!! Which it is not! just look at Samuel. I guess England doesn't consider it cost effective to do anything to help this mother and child. GRRRRRRR I don't like our system in America but this is why Socialized medicine stinks too! Samuel's mom was on bed rest at the hospital the last month or so of her pregnancy so she wouldn't go into pre-mature labor. She had a c- section to give the baby the best chance at being born alive. They gave Sam the same drugs they give pre-mature babies to help their lungs (which is why he probably survived) They went along with Samuel's parents wishes to have him placed on a ventilator - And today he is happy and bubbly, laughs and smiles and interacts with his environment. All things the doctors said he would never do.-
Just see here:
http://deenyssimplejoys.blogspot.com/2009/01/update-sam-surviving-3-12-year-old.html
Samuel also has a you tube video where he is laughing too cute!
http://www.youtube.com/watch?v=R_Q92MC8plU
And a news article all about him here:
http://www.catholicnewsagency.com/new.php?n=14845
The young mother in England is Named Chelsea - This was her last post to the Thanatophoric Support group board:
From Chelsea) ...Did anyone have a breech delivery with their baby? Ive been told Charlie is breech and may not turn so will have to deliver him/her breech. They won't do a c section so I will have to deliver myself. Also been told I won't have a doctor, just a midwife. Hope she is prepared!!
Still feel very let down by the system. No support or counselling. Have been asked if I would like a post mortem done but have said no. It seems like the medical profession want to do these things once Charlie goes, there is no help being offered while Charlie is alive! Doesn't make sense :-(
OK I am so mad at England and Socialized Medicine right now!! Sorry had to vent
Samuel also has a you tube video where he is laughing too cute!
http://www.youtube.com/watch?v=R_Q92MC8plU
And a news article all about him here:
http://www.catholicnewsagency.com/new.php?n=14845
The young mother in England is Named Chelsea - This was her last post to the Thanatophoric Support group board:
From Chelsea) ...Did anyone have a breech delivery with their baby? Ive been told Charlie is breech and may not turn so will have to deliver him/her breech. They won't do a c section so I will have to deliver myself. Also been told I won't have a doctor, just a midwife. Hope she is prepared!!
Still feel very let down by the system. No support or counselling. Have been asked if I would like a post mortem done but have said no. It seems like the medical profession want to do these things once Charlie goes, there is no help being offered while Charlie is alive! Doesn't make sense :-(
OK I am so mad at England and Socialized Medicine right now!! Sorry had to vent
