Saturday, September 18, 2010

Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 5 years old!

Update Samuel Turned 5 on Aug 2, 2010 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.

Other More Recent Pictures from about 2009 to present (11/2010) not in any order.


8/1/2008 Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia

Tuesday, September 14, 2010

Random Pictures of My House at Random Times

Random Pictures of My House- Taken at random times. Note In-laws in the family Room Playing WII. Rooms Shown; Kitchen, Family Room, Dining Room, Living Room, Master Bedroom and Master Bath, Computer and Sewing Nook in corner of Dining Room.  Sorry no pictures of the 1/2 bath guest bath or any of the upstairs which includes 3 more bedrooms another 1 1/2 baths and a loft area that is the Game/Pool/ Playroom area. The master bath is very very dated and a hodge podge of blues and green- One day we will remodel.  The bed and dresser in the Master Bedroom are over 100 years old Victorian antique past down to us when my parents past away.