Wednesday, July 18, 2012

Surviving with Thanatophoric Dysplasia- A Very Happy little kid-


Surviving with Thanatophoric Dysplasia- A Very Happy little kid- 


   Here are all my past posts about my nephew who is a Thanatophoric Dwarf in one place. He is still doing great and about to turn 7 years old in August. Samuel's mom now has her own blog about Samuel at http://hopeseed.wordpress.com/



Monday, March 5, 2012

Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 6 years old

Samuel is my nephew his mom is my sister-in-law Evelyn. Our husbands are brothers.


Samuel's Mom now has her own blog at:

  http://hopeseed.wordpress.com/



Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 6 years old!

This is Samuel and one of his teachers.

Update Samuel Turned 6 on Aug 2, 2011 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.






Other More Recent Pictures from about 2009 to present (11/2010) not in any order.


This is Samuel and his mom Evelyn (Evelyn is my sister-in-law and Samuel is my nephew)




Isn't he Darling!!




_______________________________________________________________________





8/1/2008 Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.
This is Samuel.
Hope you enjoy it and laugh along!!

Surviving Well on a ventilator, Surviving Thanatophoric Dysplasia, Surviving with Ventilator not painful, Thanatophoric Dwarf, Living With Thanatophic Dysplasia

Thanatophoric images, Thanatophoric pictures, Children living with Thanatophoric Dysplasia, thanatophoric dysplasia type 1 survivors
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Tuesday, November 10, 2009


Chose Life Story, Samuel living with Thanatophoric Dysplasia


As most of you know my nephew Samuel was born with a condition called Thanatophoric Dysplasia which is a condition that is considered incompatible with life. My Sister-in-law and brother-in-law went against Doctors wishes and did not have a therapeutic abortion. A few weeks ago Spirit FM 90.5 aired their story This is an audio file of that story that aired on Spirit FM.

Here is the audio Story/ Interview that aired

 

Here is a link to some pictures of my nephew Samuel
Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 4 years old!

Samuel's Caring Bridge Website


Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia, Living with thanatophoric dysplasia, surviving thanatophoric dysplasia, living on a ventilator
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Friday, January 16, 2009


Update: Sam a Surviving 3 1/2 year old Thanatophoric Dwarf has Fun at Sea World & Disney



Update: 1/16/09
Hi Everyone,

This is another Update on the wonderful and amazing life of Samuel who was born with Thanatophoric Dysplasia. He is surviving, thriving, full of life and doing fantastic. Here he is in his shades on his trip to Disney & Sea World. The wonderful Make A Wish foundation granted this wish for Samuel and his family. I want to let families know that if they ever have to face the choice of whether to put their child on a ventilator that these children do not live in pain and do have a very wonderful quality of life. I don't always think doctors give parents all the information necessary to make an informed decision. I think doctors in many cases scare people away from life saving procedures especially when they feel there is supposedly no hope. I want to let parents know they do have options. Choose life.

He is a giggly, happy toddler who does interact with his environment.
Samuel and His Mom at Disney & Sea World in Orlando Florida
A Wish Granted to Him By The Make A Wish Foundation

Samuel's Website
Sign his Guest book

A Sampling of Pictures From Samuel's Trip













Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia, Living with thanatophoric dysplasia, surviving thanatophoric dysplasia, living on a ventilator
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Saturday, September 18, 2010


Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 5 years old!

Update Samuel Turned 5 on Aug 2, 2010 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.






Other More Recent Pictures from about 2009 to present (11/2010) not in any order.












_______________________________________________________________________





8/1/2008 Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia



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Saturday, August 1, 2009


Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 4 years old!

Samuel is my nephew his mom is my sister-in-law Evelyn. Our husbands are brothers. This was an old post. Samuel Turned 6 in 2011 and his mom now has her own blog.


Samuel's Mom now has her own blog at:

  http://hopeseed.wordpress.com/




(new update: of 11/10/2009 A few weeks ago Spirit FM 90.5 aired their story. Here is the audio Story/ Interview that aired)

Yeah! Another Birthday- I can't believe it has been another whole year!!

For anybody new-- here is a little information about Samuel :

He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only very few have ever been known to survive into early childhood. Samuel will turn 4 years old this Sunday and miracle of miracles he is breathing on his own off the ventilator for short periods of time. According to doctors he was never suppose to be able to do that. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 4th Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

This is Samuel.
Samuel with his mom


Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia



Boy I'm tuckered out. Just too much excitement!

Hey you-- get down on the floor and play with me.

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Monday, July 28, 2008


Update: On Miracle Baby Samuel Born With Thanatophoric Dysplasia, Turns 3 years old!


Samuel is now 6 years old as of August 2011 

Samuel is my nephew his mom is my sister-in-law Evelyn. Our husbands are brothers.

Here is a link to my Sister-In-Law's New blog as of March 2012

Samuel's Mom now has her own blog at:

  http://hopeseed.wordpress.com/


Update Samuel Turned 5 Years Old on Aug 2, 2010 and is still doing awesome things. He now is in school, well the teacher comes to him, but still really cool. He uses switches to operate his computer and toys.





More Updated Pictures: From 2009 to present 11/2010 not in any order














(new update: of 11/10/2009 A few weeks ago Spirit FM 90.5 aired their story. Here is the audio Story/ Interview that aired) 



Click Here to Read A News Article on Samuel and Watch A video done by Catholic News Agency
Checkout Samuel's Newest Update 1/16/09 His Trip to Disney & Sea World

Update on Baby Samuel
He was born a Thanatophoric Dwarf. It is Also called Thanatophoric Dysplasia. It is a condition considered incompatible with life. Only 3 have ever been known to survive into early childhood. Well Samuel is going to make number 4. Samuel Turns 3 years old on Saturday and miracle of miracles he is breathing on his own off the vetillator for short periods of time. Another thing, according to doctors he was never suppose to be able to do. Check out his website where his mom keeps a journal. Feel Free to Sign his guest book and wish him a very happy 3rd Birthday. I know he and his family will appreciate it greatly and please keep them in your prayers.

Yeah to Samuel and his Family.

Tags: long-term thanatophoric survival, living thanatophoric dwarf, thanatophoric dwarf turns 3, laughing and happy child with thanatophoric dysplasia Miracle Baby, Surviving with Thanatophoric Dysplasia, Thanatophoric Dysplasia, Thanatophoric pictures, Thanatophoric Dwarfism



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Thursday, June 28, 2012

The Catholic Church Has High Moral Expectations For Both Homosexual and Heterosexual Behavior


       The Catholic Church is not bigoted toward homosexuals but has high expectations of chastity for homosexuals AND non married heterosexuals. Both groups are suppose to live chaste.
  
     I have a big problem with Protestant churches that rail against homosexual individuals but turn a blind eye to pre-marital and extramarital sex along with other sins of greed, pride, avarice and gluttony . That is bigoted. I also have a problem with churches that ignore all sexual sin and condone everything.

   Heterosexual love is the way the human race propagates itself. God demands that we regulate our sexual activity so that we will lead happier lives and fulfill our commitments to our communities. 

       The Bible is against homosexual acts, not homosexual people. The Bible did not know about or address sexual orientation as we know it today. It only addresses same sex sexual activity. God loves all people. The Bible condemns the homosexual act, not homosexual love or the homosexual urge. Catholicism does not prohibit or in any way look down upon homosexual love. In the eyes the Church the love between two men or two women can be as natural as the love between a man and a woman (For example in the Bible:  1Samuel 20:17) The love spoken about between David and John is not eros but platonic.  What the Scriptures do prohibit is homosexual intercourse.

  The following link leads to an article that has been written by Steve Gershom. Steve is a pro-Catholic, pro-chastity man with same-sex attraction. Regardless of your personal views on the subject I think we can all admire his courage and honesty.

 The Churches approach to homosexuality focuses on the benefits of heterosexuality, rather than on  homosexuality. 

   Now for some of my own opinions on the issue of Gay Marriage:
    From a Civil point of view a marriage also protects the family unit. It gives inheritance rights and child custody rights along with several other issues. The fact is that homosexuals have brought children into the mix and created families. These families deserve the same protections. If one partner dies the other should still be provider and maintain guardianship of the children. Yes provisions and wills and the like can be made that don't necessitate a marriage but there should be something in the civil courts to make these issues clearer and more straight forward. I have no problem with the idea of civil unions or gay couples and families having the same rights as married couples to protect their partners and the children etc. And frankly I don't have a real problem if they want to call it marriage instead of a civil union because just like many other types of marriage it will never be considered a sacramental marriage in the Church. That is not bigoted either because many marriages, although valid, are not considered sacramental in the Church. My own daughter's marriage is valid but not considered sacramental. Civil marriage will always be separate from a sacramental marriage.

    However, that is where it needs to stop. If you don't agree with the Catholic church on these things, that is fine, there are many other churches that will accommodate your beliefs. Don't however expect to change the Church or force the church into going against its beliefs and conscience. I can fully accept and love you but disagree with you and some of your choices. I have friends and family  who are cohabiting and although they know my opinion on the issue none would feel hated or unloved. They may in turn feel I am wrong about cohabititaion, and that is fine also. My opinions would never cause me knowingly to be hateful or unkind to anyone. 


     "There is no other subject on which the average mind is so much confused as the subject 
       of tolerance    and intolerance… Tolerance applies only to persons, but never to principles.
      Intolerance applies only to principles, but never to persons."
        Archbishop Fulton Sheen 1931 'The Curse of Broadmindedness'

      "Moral principles do not depend on a majority vote. Wrong is wrong, even if everybody is
       wrong. Right is right, even if nobody is right." -- Archbishop Fulton Sheen 1953

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Friday, May 18, 2012

Another Great Conversion Story: Pentecostal to Catholic

Brent Stubbs Blog: Former Pentecostal

Also this is his appearance and story from the program : The Journey Home

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Thursday, May 3, 2012

Do people really spend this much at the Grocery Store?

Somebody needs to teach the government how to shop. This is what the government thinks people need to spend on groceries per week, Anyone else think this is way out of wack and very high. I calculated the weekly cost for groceries for our family of 4 according to this-- the Liberal plan came to $312 per week, Thrifty plan $159 per week. Even before my adventure in couponing which I started this week I could do better than this and we eat very well lots of fresh produce and lean meat. Granted I cook a lot from scratch but even so. Sheesh

My Menu Plan for Dinners this Week

Ground Beef Stroganoff & Egg Noodles Peas

Lime Sauced Chicken & Caesar Salad Ranch Potatoes

Chiles Rellenos Quiche Cantaloupe

Roasted Pork Tenderloin with Black Beans Yellow Rice

Ravioli Florentine Garlic Toast

Chicken Cobbler Pear Gorgonzola Salad

Mexican Roll-ups Strawberries Chips & Salsa

I Spent $87 at the Grocery store and saved $43 with sales and coupons this week. Without the sales and coupons my bill would have been $130. This was a full weeks worth of groceries for a family of 4 (15yrs and up). It included staples that were not on sale. There were only 2 non grocery items and they were dental floss and listerine. This did not include any paper products,cleaning products or personal products other than the listerine and dental floss. I bought one item off the list cause the meat guy showed me that corned beef was on sale for $1.99 a pound and that was an awesome price and my Husband loves corned beef and I usually only fix it in March - go figure. I will have to figure a corn beef dinner in next weeks meal plan.

Anyway it is hard to do a complete comparison as i had meat in my freezer from previous sales and I have most staples on hand. I have been spending around $150 for just groceries per week but that is what the Thrifty Gov't plan is suppose to be. I know people that feed their families very healthfully for much less. My personal goal is going to be to stay under $100 per week for our family of four which includes a twenty something and a teenage boy. However I know other families that do way better than this. Just a challenge to me and I love to cook.
How is your grocery budget? What do you spend?Here is another interesting link It is the Government Thrift Menu Plans along with recipesIt is interesting











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